Dementia Caregiving Research Opportunities

Embark on a healthier journey together! Join the national mind and body self-care intervention study, held on Zoom, to promote stress management and heart health.

Dear Family Caregivers,

Your well-being is at the heart of our mission! We’re thrilled to invite you to participate in a groundbreaking study focused on exploring the feasibility of a group intervention tailored specifically for individuals like yourself – caregivers of loved ones with memory problems. In this national pilot study, we are seeking Black/African American women family caregivers who are age 40 or older.

You need to have at least one of the cardiovascular disease risk factors listed below:

1. Hypertension/high blood pressure
2. High cholesterol
3. Diabetes
4. Coronary artery disease
5. Obesity

By participating in this study, you’re taking a proactive step towards a healthier and more supported caregiving experience. Let’s come together, learn and create positive changes for both you and your loved ones.

Thank you for considering this opportunity. We can’t wait to embark on this journey with you!

Warm regards,

Kathy D. Wright, PhD, RN, FNAP, FGSA, FAAN
The Ohio State University
295 W. 10th Ave
Columbus, Ohio 43210

Visit redcap.link/ayv7udz5 or contact us directly at 614-292-0309 or wright.2104@osu.edu.

Our team is here to guide you through the simple enrollment process. Prioritize your well-being!

Zoom data collection visits are scheduled at your convenience before you start the group sessions at three months and six months. Participants will receive up to $75 in electronic gift cards.

Community Connection: Join a supportive community of fellow caregivers who understand your unique journey. Share experiences, insights and encouragement in a safe space. Group sessions are held weekly for eight weeks on Zoom.

Stress Relief: Discover practical, group-delivered strategies to manage stress effectively. Let’s work together to bring more calm and balance into your daily life.

Cardiovascular Health: Gain insights into minimizing cardiovascular disease risk factors. Small, positive changes can make a big difference in your heart health.

Feasibility Study: Your involvement will contribute to understanding the practicality and effectiveness of group interventions tailored for Black/African American family caregivers. This study is funded by the Robert Wood Johnson Foundation and The Ohio State University College of Nursing.

Clinical Study Identifier:
NCT05734638
IRB Protocol #: 2022B0064
IRB Approval Date: 05/03/2024
Version #: 04/16/2024

Researchers at The Ohio State University College of Nursing are conducting an exploratory study with spouses or adult children who provide care to a family member with dementia.

Oftentimes, as the family member’s dementia progresses, the family caregiver becomes more isolated in the home setting. The aim of the study is to gather family caregiver perspectives on ways of using head mounted display – augmented reality technology for group activities with other family members. The findings will assist us in developing a future study on use of augmented reality technology.

All participants who agree to participate will be asked to complete questionnaires before the study starts. We will conduct focus group interviews of 6-10 family caregivers. If you are unable to attend the focus group, we can also schedule a one-on-one interview with you.

The total amount of time for participation (includes the informed consent, demographic questionnaire and the focus group interview) is 1.5 to 2 hours.

We will give you $20 gift card for participating in the study.

If you are interested in knowing more about the study and taking part in these sessions, please contact Judith Tate at 614-292-4907 or by email at tate.230@osu.edu.

Have you been a family caregiver for a loved one who has dementia? Dementia is a brain problem that causes loss of memory, thinking, and taking-care-of-self skills.

We want to learn about the experiences of Black or African American family caregivers who helped make care choices at end of life for a loved one with dementia.

You may be able to participate in this study if you were a family caregiver who:

• took care of a family member with dementia in the past
• is 18 years of age or older
• has lost their family member within the past three years
• helped make end of life decisions for your family member
• is able to speak/understand English to do the interview
• is able to attend a one-hour one-on-one in-person, telephone or video interview

Interviews will be done at a local public location (such as a library) or by telephone or video call. You will receive a $25 gift card to thank you for completing an interview.

To find out if you can do this study or to ask questions, please contact:

Emika Miller, APRN-CNP
miller.8444@osu.edu
614-688-057

Researchers at The Ohio State University affiliated with the Golden Buckeye Center for Dementia Caregiving are developing a registry to give caregivers opportunities to be involved in caregiving research and to enhance recruitment of caregivers of people with dementia in clinical research.

Caregivers who use the Golden Buckeye Center for Dementia Caregiving resources have an opportunity to enlist in the Caregiver Research Registry and participate in studies where they are interested and eligible. Affiliated researchers will send research information and invitations to eligible caregivers enlisted in the registry. There is no obligation to participate in a particular study. You may leave the registry at any time without penalty or loss of benefits to which you would otherwise be entitled. You must complete this intake form and express interest in learning more about opportunities to participate in dementia and/or caregiving research if you are interested in participating prior to filling out the research registry consent form below.

If you are interested in knowing more about the research registry, please contact Emmett Narby, Research Technician, at 614-292-5012 or narby.1@osu.edu or Mary Beth Happ, PhD, RN, FGSA, FAAN, Principal Investigator of the research registry, at 614-292-8336 or happ.3@osu.edu.

Register today